Monday, October 30, 2006

Waterproofing Foundation

Here is a very short video of how they put gravel around the foundation. Get ready for more post to appear.



Thursday, October 19, 2006

Back to the Hospital

One week home is better than nothing. Chris was re-admitted to Barnes on Sunday Oct. 15th for some graft versus host disease (rejection) issues. Everyone gets some of these problems and usually has to be re-admitted. They warned us about this before he began the transplant. It is not considered a set back, just par for the course. So the course of treatment for gvhd begins. He is receiving steroids and was accepted into a clinical trial where he is also being given a T-cell
suppressor called MMF-standing for, I have no damned idea. They are trying to put his immune system to sleep for a while to keep his bone marrow (which is now Danny's) from trying to get rid of Chris' body. The meds will then be tapered off to see if the immune system and the body can "just get along." It will take at least 4 weeks before we know if the MMF is even working. Then the tapering will begin. If the tapering doesn't work, he may be on anti-rejection meds for a long time or forever. More later.

Terri

Wednesday, October 11, 2006

Home Is Where The Heart Is

On Friday, October 6th, Chris was discharged from the hospital! He was doing so well, they kicked him out, telling him his room was needed for someone who is sick. He is very,very tired-but that is to be expected. We will be seeing his doctor once a week for a while. Next week he will have another bone marrow biopsy. The doctor said they will look to see how much of his bone marrow is actually his and how much is actually Danny's. I had no idea they would be able to tell the difference-especially since they are perfect HLA and blood type matches. The wonders of modern medicine. We have to stay in the St. Louis area for the next 100 days to keep my baby safe. He is AMAZING!!!!!

More later,

Terri